Saturday, September 22, 2007

Legal Family

We are now legally viewed a forever family! Thursday was the big day, an exciting day, a glorious day. Soon I will share with you the address of my "other" blog, my more public blog, and I will share this address on that website. My two "worlds" will merge.

A lot has happened in the last couple weeks.

About two months ago I spoke with our school nurse to inform her of my decision to not keep her status a secret. She thought that since I worked in the district I should go to each of our 3 buildings to let them know personally so that they were not talking behind my back, could ask questions of me, I could educate them more than they already are, and it was just there and no big deal. It took me a while to wrap my mind around this information/idea. I was not sure this was the way I wanted to go at all. But then, I guess, if the information is going to be "out there" why not put it on the table and talk about it instead of hiding away???

Since school began, and since I learned of her date of adoption, I have been asking and asking both the school nurse and our Director of Special Ed when this "disclosure discussion" would take place at school. I was going out of my mind with worry, anticipation, fear, questioning, etc. Each time I asked, I was basically brushed aside. I kept telling them that the best day to do it would be Sept 19, a half day for students, half institute day for staff. That way we could go building to building with no time for gossip in between. At the beginning of school the nurse said she didn't want me to go with her after all. Ok, whatever, that's fine. I finally emailed both of them on Sept. 17 since I still had heard nothing for sure. I heard back that they would like to come talk to me after school. After school they and the social worker showed up. We sat down and the Dir proceeded to tell me that although I wanted this to happen they had contacted the school attourney and they legally couldn't since it would be like the district was giving out info on a single student. The nurse just sat there. I said that this wasn't my idea, she had asked to do this. She said that no, it was only her idea to not have me go with her. What???? For two months I worked on wrapping my mind around what it was that she wanted to do in the district and deciding that she was probably right and it was the best way. Now she is denying it was even her idea? I was floored. I left with lots on my mind.

The next day I emailed the Dir how upset I was at the meeting and how this had not been my idea. I couldn't believe it was now portrayed as me wanting this and sorry, two days before it was to happen, it couldn't. The fact we weren't going to do it wasn't even the point, although my emotional state was shaky enough preparing for this and then having it blown to bits. I then asked in the email if I could do it myself. I certainly didn't want to walk into a room at work one day and have all conversation end. If they knew upfront, hopefully that wouldn't happen. That day I was called to the Superintendent's with the Dir. of Special Ed. Same thing. I could not do that unless it was on my time. LIke they would come on their own time. That's crazy.

What I want to know is, if a parent of a child with Autism, Cancer, even HIV called the school to say they would like to meet with staff to inform them of their child and educate them on their "condition", wouldn't they be able to? I'm sure they would. Think they have in the past. What makes this different? That I work in this district. Wow.

I passed out and mailed out letters revealing my daughter's disclosure on Friday. I am very proud of my letter. It put things in a very positive light and shared the facts that they have never been at risk, and aren't at risk, I told of her wish to be, I gave them two pages of basic info, one of which was just questions and answers: Can I get HIV from a mosquito bite?, etc. At school I had given out 12 of these letters to close friends/co-workers. I had many come to me crying. A response I did not expect. No negative reactions. I love the love that has already poored from these people.

Today I went to a disclosure "workshop" in Chicago. It was myself, one other adoptive parent, two social workers and the presenter. I like the presenter a lot. But the whole workshop seemed to be based on secrets. Secrets of who to tell, who not to tell, how to get your child not to tell. The other parent didn't agree with me at all that it just shouldn't be a secret. I'm not saying we're going out and advertising in the newspaper, but why the secrecy? If we want people educated and told there is nothing to fear, why hide. The presenter was open to what I was saying. Both shared experiences of mentioning the word HIV and all the negative ideas that are out there that aren't even true. I said, I don't expect to educate the world, but how on earth do we expect people to learn the truth if we continue hiding our HIV children away and keeping them a secret. Not sharing with our friends and family the truth of the virus so that they can be educated and educate others? That makes no sense. I want a brighter future than that for my daughter and others battling this. It feels like there is not much difference over the last 20 years in how this is viewed. How does that happen? By NOT talking. We need people willing to stand for truth in our country, our world. It's ok to see little children in Africa with HIV and want to help, but not in our own country, that makes no sense.

5 comments:

Emily said...

First let me say.. what a crappy situation at the School District. That's ridiculous.

Second...you are amazing. I'm so proud of you, the strength you posess and your ability to help educate, but most of all, to love with no barriers in the way.

So proud of you and CONGRATULATIONS!!!!

Leslie said...

Congratulations on things being finalized with your daughter!! That is so exciting! I am so sorry that you went through all that with the school nurse. It is so idiotic, so insensitive, and so backward. You are being a great advocate for your daughter. All the best to you guys, and I look forward to hearing more about how things go in this process.

Julie said...

WOW- just WOW- I can't believe the school was so wrong and the nurse- WHATEVER! I am glad you sent the letters and got the response you did- it is GREAT to be supported. I pray that these things do get out- talked about- and understood. It is important that we change people's ignorance on HIV for the children's sake. I totally agree- they don't need to live a life of secrecy. Keep tooting your horn!! :)

Anonymous said...

hi we are about to take our first MAPP class. Our desire is to foster/adopt an HIV/AIDS infant... We are already getting some worries about church nurseries and I haven't even gotten approved to be a adoptive parent yet . Any good books or sources of info. regarding how to educate your family and friends on HIV/Aids.

Lisa said...

Hi! Feel free to visit my other blog... little-did-i-know.blogspot.com or email me anytime: anglsamngulb@hotmail.com

I have heard some stories from people who have had bad experiences sharing this info with others, including churches, BUT we have not had this issue AT ALL. With our church, especially because so many people from my work/school district go there, I met with the associate pastor and informed her of Olivia's status. She was great. She was honest that she didn't know much, and I shared with her the letter and fact sheet I had put together for friends and family. I then met with her and our two youth pastors as well. It was more of a... in case people come to you with concerns, this is the deal, here is some info to use or give out... etc. Have had NO issues there whatsoever.

A GREAT place you should check into is the hiv adoption group on yahoo! A wonderful resource of adoptive parents of HIV + children. Many of us have put together letters and fact sheets and I think some are archived in the group archives.

Good luck with everything! Email if you need anything or just have questions!